DVT/Pulmonary Embolism

[Joseph]

The first, in 2004, was not diagnosed as such. After six weeks in the hospital, I got better and better on beta-blocker medication. In 2007 I had the second hit just out of the blue. Being diagnosed properly this time, I underwent pulmonary catheterization and got better right on the table. DVT was found in the left popliteal vein. What remained is a medium pulmonary hypertension I am on blood-thinner medication, the thrombus disappeared (so they say!), but the PAH (pulmonary arterial hypertension) is the same, and I am experiencing dramatic shortness of breath triggered even by walking. Though the tests are not too bad, I am considerably worse now. I had to quit my job four months ago (took up teaching instead). My folks are worried. I am 53.

Being hit by emboli right in the lungs is a terrifying experience. Is there anyone out there with the same condition? (I wish to meet only those who have survived!)

My story made the doctors in the region more aware of the symptoms.

[Flo]

Hi,

It's really a frightening situation, however, at 30yo i was diagnosed with chronic pulmonary embolism living. I got to the point where i was on 20% of one lung, that was 8years ago i did an embolectomy. Recently i notice i have being experiencing SOB again and really worried. In 2001 all my clots were removed from my lungs. I am worried but still find hope in the fact that i still have life. It was a horrible experience for me.
Flo.

[Joseph]

Hi,

you are too young for the condition, aren't you. I was 49 when fell ill, doctors missed the diagnosis at that time, so i had to 'perform' again 3 years later to get the right diagnosis.
Two of my 'mates' have already had endarterectomy, (two to four years ago), they are doing pretty well.
I experience SOB lately, and try to wave things away by blaming winter, cold, fog, mist, dampness. Docs do not consider me a candidate for surgery.
I have just read the "endarterectomy" site, it says symptoms may come back. Go to your provider for a check-up. I did, and my doc says I am anxious and nervous so he put me on a calming medication. What if he is wrong?
Now i can walk and have a rest every 60yds, pulmonologist says it will not get any better so basically i am glad to keep on breathing.
By the way, a 20yo boy in my neighborhood has been recently diagnosed with pulm. embolism.
See what spring will bring.
Keep me updated, ok?
Joseph.