Interstitial Cystitis

[livingwith]

well let’s see, I’m 30 years old, I was diagnosed with this nightmere of a disease 4 years ago. I, much like most of you, have an extreamly high pain talerance, which I attribute to having suffered with galbladder disease for 3 years before the finally listened to me and did an ultrasound, I was 21 when I had that surgury.
Needless to say I had a good 5 years of a “normal” life before I was hit with this. It has been a struggle no doubt, but I really tried to maintain a d...Read the full article

[Littleangel0499L]

Hi Shannon,
I was reading the post and there was one thing on yours that really caught my attention, One congrats on getting married, and two you can not think about your soon to be husband carrying the burden of taking care of you, I really don't think he would be marrying you if he didn't think he could handle it. I really do understand were you are coming from I have been married for three years and I actually talked to my husband about divorce about 7 months after I was diagnosed because in my eyes I was damaged goods, I am 26 my husband is 42 I felt that he deserved better he deserved somone that he wouldn't have to take care on top of raising our three children. So believe me when I tell you I do understand you don't want the feeling that there are going to have to take care you from time to time and out of the clear blue because the fact that you get diagnosed with a disease that is unpredictable and uncontrable. I personally hate meds. and I try to find ways around even taking them and there were days that i can not even get out of bed I started to fall into a really bad depression. if it was not for my husband telling me that if he will not be a coward and walk away just because there is something in our lives that we can not control and that he believes that this is only going to make us stronger as a couple. and then he tries to make me laugh by saying that he didn't marry me for my organs he married me for what is on the inside. (lol he has a really bad sense of humor) but it helps and you need to believe the same thing don't look at the negative look at your future husband and realize that he loves you for who you are and not what you have, your disease does not change who he fell in love with yea it will be challenging especially when there are things that the two of you want to do and can't because you are in pain or you are in the bathroom every two minutes. and those were challenges that I have and still am going through but we found ways around it, I loved going out all the time and spending time with my husband going out to dinner and we can't do that anymore because there are alot of foods that I can not eat so we stay home and make our own dinners and sit at candle light and then we pull out board games and just enjoy eachothers company. It is very difficult because I have a temper a very bad temper and there are days that no one can be around me because I still do get worked up because I can not live the life I want to live I mean i am only 26 years old so it is very hard and I will purposely pick a fight with my husband just to realive the frustration and he figured out what I was doing and he lets me. When you have a disease that has no answers you are bound to get depressed the only thing that keeps me going is knowing that my disease is not life threatning I have to go for routine cancer test every six seven months not only that they believe that I have severe nerve damage somewhere in my body and that is why the pain is as bad as it is I have been living on perks for the last 3 months because the pain is unbearable. I also have to go in to see a pain specialist and for and MRI. I have learned that you can not fall into a depression from my expreince stress actually added to my pain, stay strong don't let this defeat you and me personally I would talk to you fiance and tell him how you feel, you might be surprised to see that he feels the complete opposite. I know that I felt better after talking to mine.

Best of luck and keep your head up

Jenn